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24HourForums.com > Supported Forums > Britt's Child Education > REPORT: There Is Hope for Kids Living with Tourette Syndrome |
| Moderated by: Britt |
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Britt Forum-Blogger© Original500© Member  Learning Contentment
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 Hello! In response to an inquiry, I spent some time researching Tourette Syndrome as it affects children. I am ashamed to admit that I held many stereotypical ideas about this illness. For one, I had the mistaken idea that most people living with Tourette Syndrome make obscene vocalizations in public. In fact, this is rare and seen only in the most extreme cases. Most tics present as facial movements.I believe it is important for children living with an illness to understand they are not doomed. Most children living with Tourette Syndrome go on to live a happy and fulfilling adulthood. The more severe cases faces the greatest challenges, but even they have the opportunity to live a good life. The key, it seems to me, is within the rest of us. We must come to accept people living with TS fully into society. What is Tourette Syndrome? Tourette Syndrome (TS) is a neurochemical disorder. TS causes involuntary movements and vocalizations known as tics. Interestingly, the tics may change over time, evolving from simple involuntary eye movements to more complex vocalizations. Severely debilitating TS in adulthood is a rarity. The involuntary utterances of obscenities (coprolalia) most associated with TS are uncommon. Most TS presents as involuntary movements and vocalizations like grunts and coughs. The condition occurs in all ethnic groups. Males are affected 3 to 4 times more often than females. There is no known cure but a host of strategies including drug therapy and counseling. Obsessive Compulsive Disorder (OCD) and Attention Deficit Hyperactivity Disorder (ADHD) are common disorders related to TS. Children living with TS can attend school. It is imminently possible for a TS child to be comfortably included in a traditional classroom setting. Educators, parents and strangers alike must be educated to understand tics are involuntary behaviors. Most people with TS live productive lives. Children living with Tourette Syndrome must be shown that it is possible to live a happy, fulfilling and joyful life with TS. Just ask former Florida Marlins star Jim Eisenreich and Manchester (UK) United’s Tim Howard. What are tics? There are two main categories of tics: Motor tics and Vocal tics. Motor tics are sudden repetitive movements of the muscles of the body that occur repeatedly. Vocal tics are in the muscles that control speech and cause involuntary sounds. Most children develop an eye tic first. Other tics develop shortly afterwards with the intensity increasing during early adolescence. Tics can be embarrassing and even painful. Tics tend to take place less during sleep and more in times when the child is under stress. Children living with TS require a stable, low-stress and structured environment. For a person living with TS, stability means a reduction of tics. Tics can also increase when a child is sick or suffering from allergy symptoms, but most often increase due to stress. USEFUL WEB SITES: For Parents and Teachers Jim Eisenreich Foundation for Children with Tourette Syndrome http://www.buildasitefactory.com/index.php?id=597 “Jim Eisenreich was able to overcome the effects of Tourette Syndrome to have a long and successful career in major league baseball. He was a member of the 1997 World Champion Florida Marlins. Jim now dedicates his time to improving the lives of children who have Tourette Syndrome.” The Jim Eisenreich Foundation has prepared four excellent resource guides. These guides assist teachers, principals, school counselors, support staff and volunteers who work with children with Tourette Syndrome (TS) and its related disorders including Obsessive Compulsive Disorder (OCD) and Attention Deficit Disorder (ADD). The resource guide for teachers is particularly excellent. It advocates discussing TS and its related disorder with classmates to de-stigmatize the disorder and suggests classroom management strategies like holding regular class meetings and creating safe spaces for students when symptoms become too great: http://www.buildasitefactory.com/index.php?id=1002 For Children Living with Tourette’s Syndrome That Darn Tic Newsletter (Tourette Syndrome Association, Inc.) http://www.keepkidshealthy.com/cgi-bin/extlink.pl?l=http://www.tsa-usa.org/ Highly recommended for newly-diagnosed children! This wonderful newsletter created by and for kids living with TS is a tremendous help. Real-life short biographies and stories of children living with TS serve to both inspire and comfort. People can and do live fulfilling lives with TS and its related disorders, including Obsessive Compulsive Disorder (OCD) and Attention Deficit Hyperactivity Disorder (ADHD). Excerpt: Leah (8 1/2 years old) Wantagh, New York  Hi! My name is Leah and I have Tourette Syndrome and OCD. I have happy tics. I have a giggle tic and a jumping tic, and I blink a lot.I like my tics, they are a part of me and they make me who I am and what I will be. When I grow up want to be either an actress, a model, a dancer, a meteorologist, a doctor or a crossing guard. I love school. I think having TS actually makes me smarter. I love my teachers and they are very understanding about my tics. I know my tics can interrupt the class sometimes.
 "All that you have is your soul." --Tracy Chapman |
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Britt Forum-Blogger© Original500© Member Learning Contentment
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"All that you have is your soul." --Tracy Chapman |
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Pussycat Forum-Blogger© Pioneer100© Member  Angel of Mischief!
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Britt. Thanks for that info. I have copied it to my site as we have a topic on TS there, and here are a few posts from ours you might find useful. PETE BENNETT Big Brother contestant, Pete, was diagnosed with Tourette Syndrome when he was 14. His Grandmother, Doreen Stephenson, explained how people found Pete’s tics difficult to understand. “Pete was always a fidget” she says, “and if we went out, I would often put my hand on his legs to stop them flicking about”. Up to 1 in 100 school-children are affected by this syndrome! Pete hopes that by being on the Big Brother show, he may make people more aware of this disorder.
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Pussycat Forum-Blogger© Pioneer100© Member Angel of Mischief!
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Another one.... TOURETTE SYNDROME George Pilles de la Tourette ( born 1857) – a French physician, who World be referred to today as a neurologist, made many valuable contributions to medical literature. It is his name that now is referred to regarding the syndrome. This neurological disorder usually becomes evident during childhood (2-15ys), and is defined by motor and vocal tics. The first symptoms are usually involuntary movements (tics) of the face and arms, limbs or trunk. These tics are frequent, repetitive and rapid. Most common is a facial tic. In some instances the whole body becomes affected and results in kicking and stamping, and can include involuntary rapid thoughts as well. Vocal tics, in the forms of grunting, throat clearing, shouting and barking also accompany this disorder, which are often referred to as Coprolalia (involuntary use of obscene words or offensive phrases). Though neither echolaia (echo speech) nor Coprolalia/Copropraxia is necessarily shown in Tourette’s syndrome. Symptons of T.S vary from person to person, and range from mild to very severe, though most cases are mild forms. ADHA/ADD, and defiant disorders along with learning disabilities are also associated with T.S. There is often a family history with the disorder, and is discovered in all ethnic groups. However Males are 3-4 times more likely to be affected than females.
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Britt Forum-Blogger© Original500© Member Learning Contentment
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Thank you, Pussycat! It is so important for children afflicted with this disorder to understand they are not alone and that a satisfying life can be theirs! 
"All that you have is your soul." --Tracy Chapman |
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newbiecollector Pioneer100© Member  You can't fake real
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Thank you so much Britt! As I told you my freind's son suffers from this and it is quite severe. He has been recommended to have home schooling next year and we are trying to find her the money to afford it. He accepts it, doesn't question it and deals with it very well. We only hope that as he grows older it will deminish or disappear, whit does happen. Thank you gain!
Enjoy the pleasure of life Wayne |
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24HourForums.com > Supported Forums > Britt's Child Education > REPORT: There Is Hope for Kids Living with Tourette Syndrome | ||||||||||||||||||||||||||||||||||||||||
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